The show must go on
- 1 day ago
- 2 min read
UPDATE on previous blog from 11 June ...
3 July 2026. As you can imagine, things have been a little eventful! 🤪 Thank you all so much for your messages. I truly appreciate every single one of them.
Life has a funny way of throwing stumbling blocks in our path… and every now and then it decides to skip the blocks altogether and drop a full-sized boulder on you. This was definitely one of those moments.
Living with hEDS is complicated, rather like my body! The hardest part is navigating an incurable, invisible illness where there often aren’t any clear answers. I left hospital still feeling unwell, knowing I hadn’t even packed for my flight the next morning. 🧳😅
Armed with what I’m fairly certain were rhino tranquilliser-strength painkillers 😉, I somehow made it onto the plane. I had two days to regroup, and convince my body to cooperate before welcoming my wonderful Corfu tour group.
Walking was… let’s call it “an slow interpretive dance” 😂 But by day two on the tour I was feeling much stronger. As they say, the show must go on! And what a show it was. An incredible group of women, endless laughter, beautiful memories, and another reminder that resilience isn’t about never falling, it’s about getting back up, even if you do it a little slower than planned.
Thank you all again for caring, checking in, and cheering me on. It means more than you know. ❤️ If you have someone in your life living with an invisible illness, check in on them from time to time. Not because they are weak, but because they are often incredibly strong, so strong that they may not tell you when they’re struggling. Because behind the strength you see, there may be a day when they simply need someone to remind them that they don’t have to carry it all alone.
You may never know just how much your kindness means — or how much they needed you that day. 🌸
#zebrastrong #EhlersDanlosSyndrome #StayFocused #Resilience #FaithNotFear #zebraadventures #daretoberare








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